It is important to remember that MS is only one part of a person and not the person.
MS does not represent them, it is not their identity, they are as normal as the next
person.
Management
You may need to make some changes to your lifestyle because of MS, but remember that
MS is only a part of your life – there are many other things still going on in your
life that you want or need to do. Managing your MS is part of living your life –
it is not just a medical condition to be treated. Having the support and understanding
of family, friends and colleagues can help you to manage things more effectively.
Over time, you may find your own ways of managing symptoms and of keeping as fit
and healthy as possible. Is it helpful to remain in touch with your health team or
should they keep in touch with you? Exercise and diet are two areas of life which
many people find helpful to control.
Some may find it helpful to attend the Expert Patients Programme – a six-week course,
offered by the MS Society, to help people gain skills for living with a long-term
condition.
Multi-disciplinary support
The team which supports you to manage your MS might involve many different specialist
areas of expertise, including:
- MS specialist nursing.
- Physiotherapy.
- Dietary advice.
- Fatigue management.
- Pain control.
Not everywhere will a formal ‘multi-disciplinary’ team be available, but you should
be able to access help in these different areas through a central point of contact.
Your GP, MS nurse or social worker, for example. Any health or social care professional
should be able to refer you to someone with expertise. If you feel you need more
advice or support be sure to ask for it.
A multidisciplinary approach to MS is required to enable the MS person to obtain
the maximum benefit from the various medications offered :
- Exercise - muscle thrives on stimulus.
- Nutrition - Proper nutrition is needed - certain aspects of diseases may interfere
with the absorption of nutrients.
- Diets - that sufferers are encouraged to follow may create deficiencies that can
affect their health.
- Supplements - Sufferers are encouraged to use supplements when it may not be necessary
- individual testing and use if needed will be more constructive.
- MS Suffers - need information that enables them to understand the disease, to make
informed choices, and to be able to challenge decisions made for them
- DMD’s + Exercise + Nutrition + Support = The multidisciplinary approach
- Keep a diary of your symptoms, the effects of any treatments you are undergoing,
how you feel generally, what pain you may experience. You may look well on the outside
but feel awful on the inside - do not expect others to know and understand how you
fee,l they will not unless they tell them.
- None of the medications - treatments listed will work in all cases, therefore it
is important that clinicians have at their disposal a range of different medications.
- Naturopaths, Acupuncturists, Herbalists, Homeopaths, complementary / alternative
therapy therapists cannot cure MS, they may be able to help with lifestyle and health
issues, and then only if they have knowledge and understanding in depth of the disease
itself.
- When considering the use of complimentary / alternative therapy ensure that the therapist
is qualified and registered with an appropriate body. Discuss the subject with your
clinician. Symptoms of MS may be masked by complimentary / alternative treatments
leading to the advancement of the disease without it becoming immediately apparent.