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UK Charity No 1131517
Time Waits for Nobody
Working Together to Make a Difference
Working Together to Make a Difference
UK Charity No 1131517
We cannot direct the wind but you can adjust the sails!
Secondary Progressive MS and Paul
Paul Burton
Told by Paul’s brother, Steven...
Paul’s first symptoms appeared in 1991 with loss of balance, dizziness, pains in legs and double vision.
First diagnosed with multiple sclerosis in 1996 following a MRI scan.
Paul has been unable to walk (even a couple of steps) and therefore has been totally
dependant on his wheelchair for the last 4-5 years.
He is still able to stand by pulling himself up with the use of support rails.
Paul suffers from muscle spasms and uncontrollable shaking of both legs every morning and occasionally during the day.
His left leg is still capable of exerting forward pressure though his right leg cannot exert any pressure. He suffers from regular back pains.
He has almost no manual dexterity with his right hand (Paul is right handed) therefore cannot write (sign his name) eat, shave etc with that hand.
Paul uses his left hand to eat with though cannot write with it.
Shaking in his left hand is evident when lifting food from plate to mouth etc.
He suffers from headaches/migraines every couple of days (relieved with gentle massage to back of head).
His speech has slowed a little though is mainly unaffected though has been slurred during relapses but has so far always recovered.
Paul can no longer read a book, in his right eye his vision is clouded, left eye vision is also clouded in the morning, but clears towards the end of the day, he suffers from double vision when tired.
Has a permanent catheter connected directly into bladder.
Paul has taken three forms of beta interferon the first was discontinued after a relapse (first/second year after diagnosis).
The second one was Avonex a weekly intra-
The third one was Rebif a 3 times a week injection into the stomach for 10 months discontinued treatment after a relapse had occurred.
He now takes Baclofen (muscle relaxant) 7-
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Paul still waits! What do you think?