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Proventus
Making Life Fairer
Working Together to Make a Difference
UK Charity No 1131517
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UK Charity
No 1131517
Proventus has been working amongst MS people studying, researching and learning about the disease. We have gone into their homes, we ask them what they want, what problems they have to surmount, what they have experienced, what help do they receive, what questions do they want answered.
What we have seen and learnt has been very difficult to believe.
It’s a disgrace and many should hang their head in shame -
The ‘Secret Life of MS’ is a 9 minute film
that is intended to show the world what MS can become for some sufferers.
They are the
‘INVISIBLE MS PEOPLE’
It is graphic -
It was filmed at the request of Tina who -
so many invisible MS people -
Tina is one of the unfortunate MS people and although many never become compromised
as much as her she still represents thousands of neglected sufferer’s.
WARNING -
Tina lives in one room on the chair where you see her sitting, she eats, sleeps and
never moves out of that chair except when she is hoisted out to go to the bathroom.
Tina has secondary progressive and was rapidly losing weight -
Since Christmas 2009 Tina has gained 7 lb since our intervention.
Tina is forced to fund her own medication for MS, she, her family and friends all contribute to purchase the only medication
that helps alleviate her MS problems.
Without intense support Tina will further deteriorate, lack of mobility or compromised mobility has lead to muscle atrophy and muscle / body weakness.
This should never of been allowed to happen, although MS is the underlying problem other problems have been caused by the failure to provide
constructive support.
Tina’s would never be in this situation if she had not been neglected.
Leaving MS sufferers such as Tina hidden away from sight, left to endure pain, weakness, depression and loneliness.
WOULD YOU WANT TO BE TREATED LIKE THIS?
This has been happening across the UK and worldwide for years and years and years, what has been done to rectify this situation?
Would you want your MUM -
Despite what you may read in the newspapers or listen to on the television very little
is actually done for these people. There are articles written by ‘health editors’
who have never been in an MS sufferers house, who have never got up from behind their
desks to investigate and confront these problems face to face -
MS -
Proventus apologises if these film clips are upsetting, unfortunately it is reality. There is no good reason for Tina to be in this situation
Tina asked for this film to be made. She is where she is because of neglect, incompetence and ignorance.
Tina is NOT a unique or even rare case there are many thousands of people worldwide who have been written off by their community as untreatable and are left to manage as best they can on their own.
Many people worldwide are in the same situation as Tina
Time waits for nobody
Produced by Chillipepper films