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Proventus

Outcome Result Success

Treat the Disease - Treat the Person

UK Charity No 1131517

Time Waits for Nobody

Working Together to Make a Difference

UK Charity No 1131517

We cannot direct the wind but you can adjust the sails!

A group of disaffected MS sufferers came together during 2004 to form an independent pressure group, the original group was spread across the UK and were part of an informed consent programme to study the potential benefit of a novel treatment known as ‘Aimspro’.

All of the group were MS sufferers - dissatisfied with their experiences of an unhelpful attitude from the MS Society UK and being uncomfortable with what they considered to be detrimental comments and actions of others they decided that they wanted to have an independent voice heard, a voice more demanding of action at the levels of treatment, cure and national politics.

The group eventually evolved into a charity - Proventus attempts to provide a voice and make an effort at a grass root level for MS sufferers and others.

All of the people involved in Proventus are volunteers - the charity relies on membership and donations to do its work, it accepts no monies from the pharmaceutical industry, related business’s, supplement manufacturers.

Commercial sponsorship of health-related research and information is, of course, not an issue of concern uniquely to Proventus. Any perception that for-profit commercial organisations, notably but not exclusively, the pharmaceutical industry, medical device manufacturers, supplement manufacturers or providers or other for non profit organisations (charities and pressure groups), were influencing or attempting to influence the information provided by and the actions undertaken by Proventus, would damage our reputation for impartiality and the questioning efforts we undertake.

Drivers for Proventus

Researches information about new and novel treatments, the claims that surround them, what anecdotal stories are available, how truthful are testimonials, what single case studies there are.
Researches questions, tests alternative / complementary therapies.
Researches and is developing wellness programmes for the MS sufferer to use that enables them to combat the day to day problems which arise.
Researches and tests various appliances.
Researches claims made by third parties in support of DMD’s, therapies,appliances.
Researches media hype, misrepresentation and false dawn propaganda.
Provides such information to the sufferer, carers and families.
Provides links to other MS groups.

Sufferers are vulnerable - when seeking help and information invariably it costs them money - a lot of money, at Proventus we believe they should receive practical help for minimal or no cost.

One of the reasons, amongst many, that Proventus attempts to be a well informed listening organisation and be highly focussed on MS is The hidden face of MS

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