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UK Charity No 1131517
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No 1131517
Multiple Sclerosis
It is important to remember that MS is only one part of a person and not the person.
MS does not represent them, it is not their identity, they are as normal as the next person.
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NICE Management Guideline -
The National Institute for Clinical Excellence (NICE) published its clinical guideline Management of multiple sclerosis in primary and secondary care in November 2003.
The Guideline involved an extensive review and grading of the research evidence for the management of MS, from diagnosis to the treatment of symptoms.
The Guideline's six key recommendations were that people with MS should have
- Access to specialist neurological and neuro -
rehabilitation services. - A rapid diagnosis (no longer than three months from referral to completion of investigations).
- A seamless service across health and social care, with all organisations in a local health area publishing protocols for sharing and transferring responsibility and information.
- A service which is responsive to people with MS, who should be actively involved in decisions about their care and treatment.
- Sensitive and thorough problem and symptom assessment, particularly focusing on "hidden" problems: fatigue, depression, cognition, sex, bladder.
- Self-
referral back into specialist services after discharge.
The Guideline presents a benchmark for services and every
- Primary Care Trust in England.
- Local Health Board in Wales.
Have a responsibility to "agree and publish information about how they will provide services".
NICE's recommendations apply only in England and Wales. It is not clear how the NICE guidelines will impact on services for people with MS in Northern Ireland.
NHS Quality Improvement Scotland began looking at possible national standards of care for neurological conditions during May 2005. They will take into account initiatives such as the NICE Guideline.