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Equipping People To Make Sense Of What They Are Told

Abuse

• The Ann Craft Trust - Internet Page
• British Association for the Study & Prevention of Child Abuse & Neglect - Internet Page
• Childline - Internet Page
• NSPCC - Internet Page
• Respond - Internet Page
• Self Harm.net - Internet Page
• Self Harm National Network - Internet Page
• Self Harm ASHIC - Internet Page

Advocacy

• Disability Rights Commission UK - Internet Page
• National Youth Advocacy Service UK - Internet Page

Benefits UK

• Benefits Information Unit UK - Tel 0800 882 200
• Citizens Advice Bureau UK - Internet Page
• Jobcentre Plus UK - Internet Page

Cancer

• Bowel Cancer UK  - 08708 50 60 50 - Internet Page
• Cancer Research UK - 0207 242  0200 - Internet Page
• Macmillan Nurses - 0808 808 2020 - Internet Page

Candida

Candida can be fun  - Internet Page

Carers

• acas - Internet Page
• Action for Sick Children UK - Internet Page
• Carers Association (Sth Staffs) - Internet Page
• Contact a Family - (for families with disabled children)  Internet Page
• Counsel & Care - 0845 300 7585 - Internet Page
• Crossroads - 0845 450 0350 - Internet Page
• Department of Health for Carers UK - Internet Page
• Great Ormond Street Family Resource Centre - Internet Page
• Princess Royal Trust for Carers - Internet Page
• Rethink - 0208 9746814 - Internet Page
• Young Carers Research Group - University of Loughborough - Internet Page

Children

• Action for Sick Children - Internet Page
• Barnardos - Internet Page
• British Institute for Brain Injured Children - Internet Page
• Child Brain Injury Trust - Internet Page
• Childline - Internet Page
• Children’s Heart Federation - Internet Page
• Children’s Society - Internet Page
• Children’s Trust - Tadworth - Internet Page
• Department for Education - Internet Page
• Hyperactive Children’s Support Group - Internet Page
• International Association of Infant Massage - Internet Page
• Kids Online - Internet Page
• National Association for Gifted Children - Internet Page
• National Blind Children’s Society - Internet Page
• National Children’s Bureau - Internet Page
• National Childcare Trust - Internet Page
• NSPCC - Internet Page
• Scope - Early Years - Internet Page
• Self Harm - Internet Page
• SIBBS - Support in Bereavement for Brothers & Sisters - Internet Page
• Teenager Cancer Trust - Internet Page
• The Source - Suffolk - Internet Page
• United Kingdom Children’s Cancer Study Group - Internet Page
• Young Minds - Internet Page

Coeliac

Glutenfreeguerrillas - Internet Page

Communication

• ACE Centre - Aids to Communication in Education - Internet Page
• AFASIC - Unlocking Speech and Language - Internet Page
• British Stammering Association - Internet Page
• Communication Matters - Internet Page
• I Can - Internet Page
• Makaton Vocabulary Development Project - Internet Page
• The Signalong Group - Internet Page

Complementary & Alternative Therapy

• British Association for Applied Nutrition & Nutritional Therapy Internet Page
• National Institute of Medical Herbalists (UK)  Internet Page
• The Society of Homeopaths (UK) Internet Page
• The Institute for Complementary Medicine (UK) Internet Page

Continence

• Association for Continence Advice - Internet Page
• Bladder & Bowel Foundation - Internet Page
• Enuresis Resource and Information Centre - Internet Page

Depression

• Depression Alliance  Internet Page
• Saneline Internet Page
• The British Association of Behavioural and Cognitive Psychotherapies Internet Page
• Oxford Cognitive Therapy Centre  - Internet Page

 

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Disability

• Action for Blind People  Internet Page
• Alzheimer’s Society  Internet Page
• Ann Craft Trust  Internet Page
• Association for Spina Bidida & Hydrocephalus  Internet Page
• Association to Aid Sexual & Personal Relationships with Disability (SPOD )  Tel 0207 607 8851
• Bobath Centre for Children with Cerebral Palsy  Internet Page
• Brain & Spine Foundation  Internet Page
• British Institute for Brain Injured Children  Internet Page
• British Stammering Association  Internet Page
• Changing Faces  Internet Page
• Child Brain Injury Trust  Internet Page
• Childhood Eye Cancer Trust  Internet Page
• Contact a Family  Internet Page
• Cystic Fibrosis Trust - Internet Page
• Deafblind UK  Internet Page
• Disablement Information Advice Line - Internet Page
• Disability Law Service UK  Internet Page
• Disability Studies Archive UK  Internet Page
• Down’s Syndrome Association UK  Internet Page
• Down’s Syndrome Educational Trust  Internet Page
• Down’s Syndrome Research Foundation (Canada) Internet Page
• Dyslexia Action  Internet Page
• Dyslexia Institute  Internet Page
• Dyspraxia Foundation  Internet Page
• Guide Dogs for the Blind Association  Internet Page
• Headway - The Brain Injury Association  Internet Page
• Hearing Concern  Internet Page
• Hyperactive Children’s Support Group  Internet Page
• I Can  Internet Page
• Leonard Cheshire Foundation  Internet Page
• London Early Autism Project  Internet Page
• Mencap  Internet Page
• Mental Health Foundation  Internet Page
• MIND  Internet Page
• Ministry for Disabled UK  Internet Page
• Motor Neurone Disease Association  Internet Page
• National Autistic Society  Internet Page
• National Blind Children’s Society  Internet Page
• National Deaf Children’s Society  Internet Page
• National Library for the Blind  Internet Page
• National Schizophrenia Fellowship Rethink - Internet Page
• National Society for Epilepsy  Internet Page
• Office for Advice, Assistance, Support & Information on Special Needs  Internet Page
• Rail Travel for Disabled Passengers  0845 605 0525.
• Reach Internet Page
• Respond Internet Page
• Rett Syndrome Association UK Internet Page
• Royal Association for Disability and Rehabilitation Internet Page
• Royal Institute for the Blind (RNIB) Internet Page
• Royal National Institute for the Deaf Internet Page
• Sane Internet Page
• Scope  Internet Page
• Sense  Internet Page
• Social Science Information Gateway  Internet Page
• Speakability  Internet Page
• Tuberous Sclerosis Association  Internet Page
• Wheelchair Children  Internet Page
• Young Minds  Internet Page

Drugs

• Centre for Medical Consumers  Internet Page
• Health Care Renewal Internet Page
• Healthy Skepticism Inc Internet Page
• The International Network of Cholesterol Sceptics Internet Page
• Therapeutic Initiative   Internet Page
• WorstPills.org  Internet Page

Holidays

Jeff Smith Foundation Internet Page

New Forest Self-catering Internet Page

Lyme Disease

British Lyme Disease Foundation Internet Page

Diagnostic Hints and Treatment Guidelins for Lyme Disease and other Tick Bourne Illness (Joseph J Borrascano Jr., M.D.) Internet Page pdf file

EuroLyme Support Group Internet Page

International Lyme and Associated Diseases Society Internet Page

Learn About Lyme Disease (Centre for Disease Control USA) Internet Page

lymebook.com/africa-europe-canada-sweden-england-uk Internet Page

Lyme Disease Action (charity group) Internet Page

Lyme Disease Network Internet Page

Ticks on the Move (UK) Internet Page

Mobility

• My wonderful stick seat! Internet Page
• Equipment Direct Internet Page  
• Insurance Chartwell Insurance (and Disabled Drivers’) Bureau - Tel 0208 958 0900
• Odstock muscle stimulator Internet Page

MS Ref - Site Page

Nutrition

• British Dietetic Association Internet Page
• British Nutrition Foundation Internet Page
• Diabetes UK Internet Page
• USA Department of Agriculture Nutrient Database Internet Page

Pain

• British Pain Society Internet Page
• British Holistic Medical Association Internet Page
• Facial Pain Association Internet Page
• Health talk online Internet Page
• Pain Relief Foundation Internet Page
• American Chronic Pain Association Internet Page
• American Pain Foundation - Internet Page

Scleroderma

• Antinuclear Antibody.mim-nih.gov - Internet Page

Nutrition.

• Yoon JH, Baek SJ. Molecular targets of dietary polyphenols with anti-inflammatory properties. Yonsei Med J. 2005;46(5):585-96.
• Herrick AL, Worthington H, Rieley F, et al. Dietary intake of micronutrient antioxidants in relation to blood levels in patients with systemic sclerosis. J Rheumatol. 1996;23(4):650-653.
• Baur JA, Sinclair DA. Therapeutic potential of resveratrol: the in vivo evidence. Nat Rev Drug Discov. 2006;5(6):493-506.
• Simopoulos AP. Omega-3 fatty acids in inflammation and autoimmune diseases. J Am Coll Nutr. 2002;21(6):495-505.
• Wang HK. The therapeutic potential of flavonoids. Expert Opin Investig Drugs. 2000;9(9):2103-19.
• Hale LP, Greer PK, Trinh CT, James CL. Proteinase activity and stability of natural bromelain preparations. Int Immunopharmacol. 2005;5(4):783-93.

Rheumatoid Factor.

• Rostaing L, Modesto A, Cisterne JM, Izopet J, Oksman F, Duffaut M, Abbal M, Durand D (1998). "Serological markers of autoimmunity in renal transplant patients with chronic hepatitis C". American journal of nephrology 18 (1): 50–56. Patient UK - Internet Page.

Scleroderma.

• Goldman L, Ausiello D, eds. Cecil Medicine. 23rd ed. Philadelphia, Pa: Saunders Elsevier; 2007.Varga J, Denton CP. Systemic sclerosis and the scleroderma-spectrum disorders. In: Firestein GS, Budd RC, Harris ED Jr., et al., eds. Kelley's Textbook of Rheumatology. 8th ed. Philadelphia, Pa: Saunders Elsevier; 2008:chap 77.
• Clouse RE, Diamant NE. Esophageal motor and sensory function and motor disorders of the esophagus. In: Feldman M, Friedman LS, Brandt LJ, eds. Sleisenger and Fordtran's Gastrointestinal and Liver Disease. 8th ed. Philadelphia, Pa: Saunders Elsevier; 2006:chap 41.
• http://www.nejm.org/doi/full/10.1056/NEJMra0806188.
• Silver RM. Scleroderma: clinical problems: the lungs. Rheum Dis Clin North Am. 1996;22(4):825-40.
• Sjogren RW. Gastrointestinal features of scleroderma. Curr Opin Rheumatol. 1996;8(6):569-75.
• Treatment/Therapies.
• Gelber AC, Wigley FM. Treatment of scleroderma. Curr Opin Rheumatol. 1995;7(6):551-9.
• Maeda M, Kachi H, Ichihashi N et al. The effect of electrical acupuncture-stimulation therapy using thermography and plasma endothelin (ET-1) levels in patients with progressive system sclerosis (PSS). J Dermatol Sci. 1998;17(2):151-155.
• Wollina U, Abdel-Naser MB, Mani R. A review of the microcirculation in skin in patients with chronic venous insufficiency: the problem and the evidence available for therapeutic options. Int J Low Extrem Wounds. 2006;5(3):169-80.
• Herrick AL. Advances in palliative care for the patient with scleroderma. Curr Opin Rheumatol. 1996;8(6):555-60.
• Hunnicutt SE, Grady J, McNearney TA. Complementary and alternative medicine use was associated with higher perceived physical and mental functioning in early systemic sclerosis. Explore (NY). 2008 Jul-Aug;4(4):259-63.
• Casale R et al Systemic sclerosis (scleroderma): an integrated challenge in rehabilitation. Arch Phys Med Rehab. 1997;78(7):767-73.
• Kartnig T. Clinical applications of Centella asiatica (L.) Urb. Herbs Spices Med Plants. 1988;3:145–173.

 

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