Involvement
Information
Inspiration
“If you can’t do great things,
do small things
in a great way”
“To the world you may be one person, but to one person you may be the whole world”
“Concentrate on working to control the controllable, the rest will happen anyway”
The Proventus
Project
Fighting Autoimmune
Diseases
The Proventus Project is a volunteer run charity that works to make awareness of
new and novel treatments for auto-immune, neurological and inflammatory diseases,
wellness, health and rehabilitation
Charity No 1131517
Company limited by Guarantee No 05386441
Autoimmune, neurological and inflammatory diseases, are a varied group of conditions, which involve almost every human organ system and share many similar symptoms.
Unlike cancer, which is an umbrella term for a range of diseases, auto-immunity has
yet to be wholly embraced by the medical community, and the public, as a category
of diseases.
Even though there is some universally accepted knowledge about auto-immunity its
victims, mostly women - have suffered from a lack of focus and a scattered under
funded research approach.
Neurological conditions are the result of damage to the brain, spinal column or nerves, caused by illness or injury. Many of the precise causes of neurological conditions are not yet known.
Some neurological conditions may be life-
Some neurodegenerative conditions affect people in their teenage and adult years, although a small number of children have been diagnosed with neurodegenerative conditions. These conditions will cause deterioration over time, affecting a person’s quality of life and their ability to live independently.
Some neurological conditions are life threatening, and many cause life-long disability.
Neurological conditions are very poorly understood and levels of awareness are low
even about relatively common conditions. Also there are a large number of rare conditions
which are largely unheard of by the public and most health and social care professionals.
Awareness of new and novel treatments?
The pharmaceutical industry is approaching a “patent cliff” whereby the strong market position it currently holds is set to decline over the coming few years.
Most drugs that were approved for use recently have been researched and developed not by “big Pharma” but by the smaller pharmaceutical companies.
Drugs are given a clinical score by health professionals who generally will see a person with a chronic condition as a number rather than a human being.
Health professionals may generate a prescription for a medication against its considered efficacy as opposed to it's proven efficacy.
An often neglected point is whether a particular medication, whose clinical trials score apparently show improvements, will actually help in improving a persons “Quality of Life“
Improved clinical trial parameter scores should be set against whether the use of the medication will add to the persons quality of life. That is for them to actually be “feeling better”.
There is a world of possibilities today and there will always be a world of possibilities tomorrow, but today and tomorrow provides no possibilities to people who have chronic conditions unless they, as individuals take control of what they want to say and make an effort to make themselves heard!
